Help Matthew go to kings hospital in London

Matthew needs trips to kings college hospital london for surgerys and treatment for a rare liver cond none of which should be there.

Matthew is an 8 year old boy with a very rare congenital liver condition affecting both his liver and spleen. He has been sick for two years now and have only recently found out the diagnosis.. Matthew has whats called portal hypertention and portal vein thrombosis which is a blockage caused by a clot in the main vein connecting the intestines and spleen to the liver. Because of this blockage insu

fficient amount of blood and nutrients are able to pass through the liver which has caused it to scar and shrink significantly. Due to the scar tissue the liver is unable to preform an important job of cleaning the toxins like ammonia out of the blood before it passes back into the system. For Matthew this means he is left with high ammonia levels which may be causing encephalopathy (brain disease) affecting his short term memory , concentration , has poor judgement and his thinking ability.. life-threatening aspects of this condition are veins(varices) which grow in his stomach and eosophagus to bypass the blockage but as these are unable to cope with the pressure they swell and burst causing a bleed which can be fatal. Matthew needs to get a scope put down every few months to band these veins to prevent this from happening.. Back pressure into the spleen has caused it to enlarge which causes him pain a lot of the time. The spleen of its own accord has made secondary veins branching out into the kidneys and back to the heart.. He also has a clotting deficiency , low platelet count and a peptic ulcer.. Matthew day to day can feel quiet nauseated and would have pain on and off. He gets tired easily and can find it hard to keep up with friends when playing. He is unable to play any contact sport incase of a potential rupture to his spleen which is hard on him when he sees his friends being able to play hurling , rugby etc...
He has ongoing appointments in Our Ladys Childrens Hospital Crumlin for frequent scans , blood tests , scopes etc but now needs to attend Kings College Hospital in London for further tests and treatment. This treatment will include surgery to fix the blockage , debulk or remove the spleen and possibly may need a liver transplant . Money raised in the upcoming events will help towards cost of flights , accomodation and general expenses when having a sick child in hospital.. Any help will be greatly appreciated.....

https://www.paypal.com/cgi-bin/webscr?cmd=_s-xclick&hosted_button_id=AKT9LFBDFNJGN

12/08/2017

Still doing well guys, appointment in Crumlin in September which I'm sure will be a positive one ❤

28/02/2017

Rare disease awareness day love him # # #

09/02/2017

Don't be on here much guys as Matthew has been doing amazing thank god.
Two years today since he had his surgery , it's gone so fast and he is loving life

31/12/2016

Wishing you all a very healthy and happy new year # # #

26/12/2016

Hope everyone had a lovely Christmas and we wish everyone only the best of health and happiness for 2017 xx

17/11/2016

Hi guys haven't been on here in a while as Matthew has been doing so well I'm just lapping it up :)
Everyone on here has been amazing to us in showing us support since the page was set up and I would just like to ask if ye could take literally a few seconds to sign this petition please ?

Its to introduce classes on Mental Health in schools which I really think could make a huge difference by teaching kids its OK to talk and the importance of knowing that no matter how they are feeling they are never alone...
Su***de is becoming more and more apparent and things need to change now ...

I would really appreciate ye taking the time to sign this and help Darragh make these Mental Health classes mandatory in schools..
It could save a lot of lives in the future...thanks x

https://www.change.org/p/cork-city-council-get-mental-health-classes-mandatory-in-secondary-schools?recruiter=84204507&utm_source=share_petition&utm_medium=copylink

15/09/2016

I haven't posted here in a good while mainly because Matthew has been doing so well lately.. here he was today waiting for the all important review scan to see how things are going .
I am so delighted to say that his shunt is still doing its job and everything is working really well!!!! Still cant believe it and best thing is he can now start thinking about which sports hed like to start playing finally :) hes so excited.....He will continue to get scans and blood tests to monitor things as he gets older but today was a good day :)

In 2015, we granted Matthew’s wish to go on a sun holiday.

‘It all began back in 2012 and the final diagnoses was made in July 2013. Matthew was diagnosed with Portal vein thrombosis with many life-threatening complications. The diagnosis turned our life upside down. For Matthew it meant he was and still is, unable to play contact sports. He missed a lot of school and missed out on playing with friends. When Matthew first found out he was being granted a wish his face lit up. I hadn’t seen him smile like that in such a long time. Matthew loved every minute of his wish. He loved being able to go to the beach and pool any time and couldn’t believe how hot it was! He is still talking about it and we have memories that will last forever’ – Lena, Wish mum

Every child deserves to have their wish granted. Help us #MakeMemories by sharing Matthew’s story or visiting www.makeawish.ie

13/08/2016

Please like and share their page and if ye can donate anything at all no matter how small it would help so much in granting the wishes of many other deserving children... thank you...
Will also do an update on Matthew soon # # #

In 2015, we granted Matthew’s wish to go on a sun holiday. ‘It all began back in 2012 and the final diagnoses was made in July 2013. Matthew was diagnosed with Portal vein thrombosis with many life-threatening complications. The diagnosis turned our life upside down. For Matthew it meant he was and still is, unable to play contact sports. He missed a lot of school and missed out on playing with friends. When Matthew first found out he was being granted a wish his face lit up. I hadn’t seen him smile like that in such a long time. Matthew loved every minute of his wish. He loved being able to go to the beach and pool any time and couldn’t believe how hot it was! He is still talking about it and we have memories that will last forever’ – Lena, Wish mum Every child deserves to have their wish granted. Help us #MakeMemories by sharing Matthew’s story or visiting www.makeawish.ie

23/04/2016

Don't you just love the good weather 💖

27/03/2016

Hope everyone has a great weekend 😊
Matthews still trying to shift his ear infections but they definitely won't get in the way of him enjoying his easter eggs! X

17/03/2016

14/03/2016

Matthew came to me with tears this evening and when I asked what was wrong he said, "I'll never be able to have my dream of being a soccer star because of my tummy" 😢
But I know he will because of his determination and with a bit of luck his next scan will be a good one and he might get the go ahead to start playing finally...

A few of you have been asking in the last few weeks how he is because I haven't been posting much here I know...
He's been doing well thank God, a little on the low side the last two weeks so bloods have probably dropped again but I'm sure the easter holidays will do him the world of good and perk him up a bit again 😊
Another hearing test showed he still has loss of hearing so he will be fitted now with hearing aids soon which will hopefully help him out...(plus he can show off how cool they are) 😊

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