17/09/2026
I missed Eczema Awareness Day. To be fair, I always miss it, but Iโve been thinking a lot about what it actually means to live with eczema. This is highly individual and nobodyโs experience is the same, but this is mine.
Itโs not just about the skin, the superficial, the seen. Itโs the constant discomfort, itching, burning and dryness. The even more broken sleep and the awareness of your own skin that you canโt quite switch off.
Itโs not being able to shower when or how you want because you know what hot water (or water in general), certain products or too much time in the shower might do, especially for the hours afterwards.
Itโs thinking twice about the gym, sweating, what youโll wear, whether your skin will tolerate another layer or another day of being uncomfortable.
And there is something about living with a flare that can make your whole system feel heightened. When your skin is constantly sending signals of irritation, discomfort or itch, it can be difficult to feel completely at ease in your body. Your attention is repeatedly pulled back towards it.
The skin isnโt simply a surface. Itโs where we meet the world. And when that boundary is inflamed or uncomfortable, it can affect so much more than what we see in the mirror.
Iโm fortunate that my eczema isnโt something I live with constantly. My major flare-ups tend to come every 5โ7 years, but when they come, they can last for a VERY long time.
You can see the visible symptoms, but you canโt see the constant sensory input, the things youโre avoiding and dreading, or the nervous system that never quite seems to get the message that itโs safe to switch off.
Living through another flare has reminded me yet again that the body isnโt a collection of separate parts. They are all in conversation with each other.
Sometimes supporting the body means learning to listen to everything it is telling us, not just the part that happens to be visible.