Lahaina Divers Reunion

Meet at Westport Winery on June 1 and 2 to celebrate 35 years of Lahaina Divers.

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Ocean's Daughter Distillery tasting room is taking shape. #vodka #gin #whisky #rum #tequila @westportwinery

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We are going to have loads of strawberries this summer at Westport Winery Garden Resort. #crushingit #wawine #westportwinery

[04/25/19]   Here is an update on Pete Voss from John Smead.

Hello All,

I saw Peter last Saturday. He is doing well overall and certainly much better than 3-4 months ago. His speech issues are still there but for the most part I could understand about 75-80% of what he wants to say. It is more of a problem when he gets excited to say something or tries to speak a complicated work or phrase. It just doesn't come out the way he wants it to. He clearly has what is called expressive aphasia. You can google it for a better explanation, but essentially his brain knows exactly what he wants to say and it just wont come out the way he wants to say it. If he is using 1 or 2 syllable words it is so clear that you'd think there is no issue at all... then when he tries to string it together into a whole complex sentence and it all goes to hell for him.

He has lost some weight but a big problem now is he has horrible swelling in his legs. the nurse said that it is primarily water retention but whatever is causing it I have a hard time figuring out why they cant do more. His sister Vickie is on it too and is trying to get some better oversight by the doctor.

As far as accommodations go it remains an awesome place. some have asked me when he is moving and to where. For those of you not into the whole medicare scene, Peter was sent there following his stroke on an acute recovery/therapy basis, after 6 weeks that was converted to longer term which is usually 6 months in duration and include some PT. When these things happen you need to find a short term bed and long term bed facility. this had both.

the legal reality (IMO) is they would love to discharge him. they cant do that because he has no place to go that is at the level of payment he pays there. no place wants to take him because legally once they do, they are stuck with him (just like the place he is in now is stuck with him). he would like to get back to san diego or closer to where his sister lives but those places are like 50% more than he pays now (it is all through social security).

the reality is he still needs a lot of support. he would have trouble cooking, cleaning, he has no transportation (for shopping, medical etc), and in an emergency it is not clear how he would be able to respond. My evaluation is that speech-wise peter has pretty much recovered what he will recover. we went to lunch and he can walk without a walker but it sure made me nervous. so mobility-wise the paralysis is gone but he is clearly weak on his left side. I suspect that this has recovered as much as it will too.

mentally he is alll there, we were laughing about old stories and he totally knows and remembers those events, he had a better recall of names than I did. It is a problem getting it all out, but it is in there.

I think that about covers the update...Peters facility is about 1 hour east of palm springs..

take care,

John Smead

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Vote - Sea Glass Grill at Westport Winery Garden Resort - Best Winery Restaurant Nominee: 2018 10Best Readers' Choice Travel Awards

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Vote - Sea Glass Grill at Westport Winery Garden Resort - Best Winery Restaurant Nominee: 2018 10Best Readers' Choice Travel Awards

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Vote - Sea Glass Grill at Westport Winery Garden Resort - Best Winery Restaurant Nominee: 2018 10Best Readers' Choice Travel Awards

10best.com Sea Glass Grill at Westport Winery Garden Resort: Vote for your favorite winery restaurant in the USA!!

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Vote - Sea Glass Grill at Westport Winery Garden Resort - Best Winery Restaurant Nominee: 2018 10Best Readers' Choice Travel Awards

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[06/26/18]   Hello all,

went to see pete on Saturday. Spent a couple of hours there. Things are improved. Not as much as last time from a % point of view, but Peter is walking much better and his language has imp[roved. there were a number of times he got out a decent sentence that I could understand. It is not good enough to pull off a phone call for sure, but it was an improvement. There is a lot of swelling on his right leg/foot. I am guessing this is tied to the paralysis on the right side and a circulation issue. Vicki is running that to ground too with the med staff there. but he is walking a lot-at least 4x/day around the facility. told him we need to get that up to 10x.. the work out room is only available if under supervision to that is a difficult thing to coordinate.

From what I can tell he will be there for 1-3 months. I hope the longer the better because it is a real nice place and he is back to getting speech therapy 1-2 a week, now that the Medi-cal has kicked in. After this it is a bit up in the air but Vicki is working with the admin people to find out a list of places that would take him and hopefully provide some ongoing services as well.

I have a bet with Peter about weight loss.. he is at 385 now. he was close to 440 when he had the stroke. he will likely beat me but we are competing to both lose 85 pounds...so that story will be continued.

he said to say hello to everyone. he knows you are thinking about him and sending good wishes and prayers.

John Smead

Lahaina Divers Reunion

Restored our Captain Kenny original from Dan Green. Love those quirky Lahaina characters. From we were all together for Blain's 60th birthday in 2010. Thank you.

Restored our Captain Kenny original from Dan Green. Love those quirky Lahaina characters. From we were all together for Blain's 60th birthday in 2010. Thank you.

Lahaina Divers Reunion

Here is the latest from John Smead about Pete's progress:

Hello All,

I went to see peter yesterday. spent a bit over 2 hours with him. I had a chance to talk to the case manager and his speech therapist.

Overall I was pretty happy with the visit. Peter is mobile with his walker. He can get in and out of bed, dress himself and can now take care of hygiene stuff on his own. significant improvement from 3 weeks ago. when i got to the facility he was in the cafeteria going over some hand outs the speech therapist had left for him. He takes at least 4 turns around the facility each day on his own. it does wear him out (i did one with him) so it is having a positive effect. he has lost weight for sure. I dont know how much but i am guessing 40 lbs. Long way to go but it is a start.

the remaining issue, and it is a big one, is communication. I cant stress enough how much better it is but there is such a long way to go. the physiology of this is that whatever recovery there is going to be from where he was before the stroke, about 50% will happen within the first 3 months. (it has been 2 months so far). another 25 % will take the next 3 months and the balance of any recovery could occur over the next 1-2 years. if patients recover 80% of what they had it is considered a success...

as usual the treatment is driven by insurance issues. there is no way to accelerate treatment since staff are not allowed to "do extra" or "do more" than what is offered by the insurance. and you cant get outside people to help because they have to be associated with the facility that is providing the care. it is quite frustrating to say the least but it is what it is. I will say that he is in a great spot and I can tell the staff likes him and is probably doing as much and even more than the minimum. the talk with the speech therapist was excellent. she really knows her stuff and is working hard on the specific issues that peter struggles with.

his problem is "expressive" language. he gets whatever you are telling him totally. but he struggles to find the right word to use to communicate and then when he wants to make a sentence of more than 4 words he struggles to put them together in an articulate way. the therapist believes, and i agree, that peter does not really hear that his sentences dont make sense. hearing and language are tied together quite a bit and whatever is processing is just not getting out the way he wants it to. He can write a bit and that can help but sometimes the word he is writing is just not making sense to me but it seemed to him to be accurate.

i will say that despite all that it was so much better than before. sometimes especially with 1-2 word things it was fine. at one point i asked him a question and he responded perfectly clear, "it's complicated". blew me away and then when he tried to expand on that is was just gibberish to me... frustrating for sure for peter too.

it can be a bit emotional too. at one point peter pointed at himself and asked me "when... will.. I ..be me.. again?" each word was said separately and slowly but it was a difficult time for the both of us. he knows that it is probable that he wont get all the way back and when i showed him the pictures i took previously he was amazed how much better he is now. and it helped him realize how far he has come and how much more there needs to be. but as i said he is working hard and wants to spend the time doing his physical and speech exercises so at this point that is all there is to expect. He remains strong in his spiritual outlook. he commented "..happen.. for.. reasons.." and then said, "god..knows.."

He will likely be there for at least 2 months. he is waiting for medi-cal to be approved which will lead to more treatment options. as things improve, medical will make other options available for housing, treatment, etc. so much of this is the bureaucracy of the system and his sister has borne the brunt of getting all this done since peter is not capable of doing any of it at this point. it is also a sobering reality of what health care costs today. there are resources available if you have nothing but to get access to them you have to be cognitively with it enough to apply and quite often people are not and if a family member has 'taken over' for them legally then all of their assets come to bear in making decisions. so it is a "game" of trying to see how you can help without getting "stuck" with the financial responsibility. the place peter is at is excellent. it probably cost 3k a month just to stay there. services are additional. all of it is paid for by medicare and medi-cal at this point. the future will be determined by how much peter improves. unfortunately language is not a big deal to insurance. if he can dress, take care of hygiene and feed himself they say his is fine and the housing and treatment type and time becomes limited after that.

ok a long winded update...

John

Here is the latest from John Smead about Pete's progress:

Hello All,

I went to see peter yesterday. spent a bit over 2 hours with him. I had a chance to talk to the case manager and his speech therapist.

Overall I was pretty happy with the visit. Peter is mobile with his walker. He can get in and out of bed, dress himself and can now take care of hygiene stuff on his own. significant improvement from 3 weeks ago. when i got to the facility he was in the cafeteria going over some hand outs the speech therapist had left for him. He takes at least 4 turns around the facility each day on his own. it does wear him out (i did one with him) so it is having a positive effect. he has lost weight for sure. I dont know how much but i am guessing 40 lbs. Long way to go but it is a start.

the remaining issue, and it is a big one, is communication. I cant stress enough how much better it is but there is such a long way to go. the physiology of this is that whatever recovery there is going to be from where he was before the stroke, about 50% will happen within the first 3 months. (it has been 2 months so far). another 25 % will take the next 3 months and the balance of any recovery could occur over the next 1-2 years. if patients recover 80% of what they had it is considered a success...

as usual the treatment is driven by insurance issues. there is no way to accelerate treatment since staff are not allowed to "do extra" or "do more" than what is offered by the insurance. and you cant get outside people to help because they have to be associated with the facility that is providing the care. it is quite frustrating to say the least but it is what it is. I will say that he is in a great spot and I can tell the staff likes him and is probably doing as much and even more than the minimum. the talk with the speech therapist was excellent. she really knows her stuff and is working hard on the specific issues that peter struggles with.

his problem is "expressive" language. he gets whatever you are telling him totally. but he struggles to find the right word to use to communicate and then when he wants to make a sentence of more than 4 words he struggles to put them together in an articulate way. the therapist believes, and i agree, that peter does not really hear that his sentences dont make sense. hearing and language are tied together quite a bit and whatever is processing is just not getting out the way he wants it to. He can write a bit and that can help but sometimes the word he is writing is just not making sense to me but it seemed to him to be accurate.

i will say that despite all that it was so much better than before. sometimes especially with 1-2 word things it was fine. at one point i asked him a question and he responded perfectly clear, "it's complicated". blew me away and then when he tried to expand on that is was just gibberish to me... frustrating for sure for peter too.

it can be a bit emotional too. at one point peter pointed at himself and asked me "when... will.. I ..be me.. again?" each word was said separately and slowly but it was a difficult time for the both of us. he knows that it is probable that he wont get all the way back and when i showed him the pictures i took previously he was amazed how much better he is now. and it helped him realize how far he has come and how much more there needs to be. but as i said he is working hard and wants to spend the time doing his physical and speech exercises so at this point that is all there is to expect. He remains strong in his spiritual outlook. he commented "..happen.. for.. reasons.." and then said, "god..knows.."

He will likely be there for at least 2 months. he is waiting for medi-cal to be approved which will lead to more treatment options. as things improve, medical will make other options available for housing, treatment, etc. so much of this is the bureaucracy of the system and his sister has borne the brunt of getting all this done since peter is not capable of doing any of it at this point. it is also a sobering reality of what health care costs today. there are resources available if you have nothing but to get access to them you have to be cognitively with it enough to apply and quite often people are not and if a family member has 'taken over' for them legally then all of their assets come to bear in making decisions. so it is a "game" of trying to see how you can help without getting "stuck" with the financial responsibility. the place peter is at is excellent. it probably cost 3k a month just to stay there. services are additional. all of it is paid for by medicare and medi-cal at this point. the future will be determined by how much peter improves. unfortunately language is not a big deal to insurance. if he can dress, take care of hygiene and feed himself they say his is fine and the housing and treatment type and time becomes limited after that.

ok a long winded update...

John

[04/29/18]   This is an update we received from John. We will see him today and probably get more info on Pete.
I went to see Peter on Wednesday. He is at the

High Desert Continuing Care Unit

6722 white feather rd

joshua tree, ca 92252 760-366-1500

you can google it , it is about 1/2 east of palm springs

He is now able to walk with assistance and is getting an hr of physical, occupational and speech therapy per day. He will be there for at least a month and maybe up to 3 depending on how it goes.

the good news is he is working hard and the picture is of him during the PT work. he had to be told to slow down and wanted to do more but they stopped at an hour. remember he was paralyzed on his right side initially.

He is able to feed himself. he is not able to dress himself or go to the bathroom w/o assistance. his rt side is still very weak especially his arm area but he can move it. His rt leg is doing better and enables him to walk with assistance.

the biggest problem is his speech. he has expressive aphasia. you can google that too.. there is some minor improvement since i saw him 10 days ago. they are working with him to say single words and he can do a bit of writing on a board since he is left handed. I am not sure if he doesnt know the words or just cant get it out. I suspect he just cant get it out. It seems he knows what he wants to say and when he says it he looks at you to see if you understand him, when you say you dont he tries again and it sounds the same. i also cant tell if he thinks he hears it correctly or not. but it sounds like gibberish to the listener.

sentence communication is not happening. it is yes or no and single words. The big issue of course is if it is going to get better. if you google expressive aphasia you will see that recovery from it is very problematic. if he can get to where he gets up on his own, dresses and can use the bathroom on his own then he can live on his own even if his speech is not there.

thats all for now. it doesnt make sense to call him. he cant communicate if they handed him the phone. unless someone else is there they can then repeat what you say. it was clear to me that he understood everything i had to say..

I mentioned all your names and told him you said hello..he gave the thumbs up to each one.

John Smead

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