03/14/2019
For anyone who has questions about how gene therapy would help girls with Rett Syndrome, watch this. 💜 🧬
Grit with Grace : Abbigail's Journey with Rett Syndrome
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This is all about our sweet Abbigail and the journey we are on with her diagnosis of Rett Syndrome, a rare neuro-developmental disorder. This girl, Miss.
Abbigail Mae Jackson, has brought more light into our world than we could have ever hoped for. She is are guiding light through this less than walked journey for hope. Your smile is contagious, your laugh is infectious and your excitement to learn more about this world gives me hope everyday. The world had to make room for a little more fancy the night you were born. I remember it like yesterday,
03/06/2019
Thankful for the supporters in this two minute video that shows you a little bit about what defying the odds means. It gives you a glimpse into what these girls can do when given a chance. Every Rett girl is so much more than their diagnosis. I heard someone ask my husband if he thought therapy was working and we always respond yes. We don’t do what we do just for fun. A minute spent on therapy is never a waste of time. Never. We do what we do for her. To give her a chance. To keep the skills we still have. To work towards new goals, cross barriers, obtain new skills and exceed the doctors expectations. We do it because we know she can. All you need if faith, trust and an attitude to never give up. We love you Abbigail Mae. ❤️❤️❤️
10/01/2018
October is Rett Syndrome Awareness month. 3 years ago I didn’t know what Rett Syndrome was. Now it’s my goal to help people understand what Rett Syndrome is and create awareness. I can’t tell you how many doctors, teachers, nurses, therapists and specialists have never heard of Rett. Had you heard of Rett Syndrome before you met Abbigail or our family? Help spread the word. Share this post. Google Rett Syndrome. 17 girls a day. 1 in 10,000 births. There is HOPE. 17 clinical trials with more in the works. If cured, it could also help Alzheimer’s, Parkinson’s and many others. Help us create awareness for Rett Syndrome 💜💜💜
09/06/2018
💜💜Check out this documentary that will talk about Rett Syndrome 💜💜
06/14/2018
Thursdays are for therapy. 🎉👸🏼💗
04/04/2018
Great read.
“When outsiders make suggestions most of the time from a loving place, it kills me a little. It always makes me feel less than. Like I’m not doing enough when I’m giving all that I have.”
Everything I Wish I Could Say... - Finding Cooper's Voice As autism awareness month continues, I'm flooded with so many thoughts and emotions. Most days I'm brave and a warrior mom but sometimes I crumble too.
10/04/2017
17 girls a day. 1 in 10,000 births. Statistics are changing daily as many have been misdiagnosed. Had you heard or Rett syndrome before you met me or Abbigail? I can say I was clueless to this syndrome until her Occupational Therapist mentioned it during a session last October. I googled and read WebMD and my heart sank. I knew. A month and half later it was confirmed. Help me spread awareness & knowledge. Share this post. Share our story.
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10/03/2017
Rett could be reversed one day. That could help lead to a cure for countless disorders. There are numerous trials in progress right now. There is hope. Pray for a cure. Spread the word. Share this post. Tell someone you know about Abbigail. Google Rett Syndrome.
10/02/2017
October is Rett Syndrome awareness month. I'll be posting info to help educate and spread knowledge on Rett Syndrome throughout the month. If you have any questions feel free to ask!
Ryan Jackson Meggan Dinham Jackson
08/27/2017
Abbigail Mae had a great first week at school! She loved seeing her teachers and teacher aides. I am so excited to see what this school year holds for you sweet girl!! #2017 Meggan Dinham Jackson Ryan Jackson
08/23/2017
This video shows Kassie Wood Morell's family and her girls Cure Rett For Kenzie And Kaylie journey. Such a beautiful and strong family. We hope to meet you guys someday! 💜💜 Rettsyndrome.org
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