Run for Epilepsy

Join us and walk/run/bike to raise awareness for Epilepsy and to offer encouragement, and support for people living with Epilepsy in our community.

Katelyn Lewis was diagnosed with epilepsy when she was only 1 year old. Katie had several generalized seizures a day and was, for most of her life, on three different anti-convulsants in an attempt to control her epilepsy. Medication never made any improvements in her condition. From the ages of 8-12 Katie followed the ketogenic diet, and although she had reduced seizures while following this diet

she was never seizure free. Her seizures were so severe that she was unable to participate in sports, couldn't safely ride a bike and was largely uncoordinated in all she attempted to do. Katie had started a paper route, but was told by her doctor that she had to give it up for safety reasons. On September 18 2008 Katie entered into a state of status epilepticus, a life threatening condition of non-stop seizures which lasted for approximately 4 hours. The doctors didn't know if she would live through the night as she was being kept alive by life support machines in the intensive care unit. Katie lived through the night and was actually released from hospital not long after resuming breathing. Katie's seizures continued. In November 2009 Katie was admitted to the epilepsy unit at the London Health Sciences Centre in London Ontario. While there it was discovered that Katie was a candidate for brain surgery, and on December 3 2009 she had a right temporal lobectomy. Since then Katie has had no further seizures or auras and is currently in the process of weaning off her medication! After watching her father, who also has epilepsy, run a half-marathon in 2010 Katie decided that she would do the same to raise epilepsy awareness and also to raise much needed financial support for the epilepsy unit in London Ontario who literally changed her life. On September 18 2011( three years TO THE DAY from when she almost died from her status epilepticus) Katie and her dad ran a half-marathon - 13.1 miles - in the Thunder Bay Marathon - Miles with the Giant. Her triumph has motivated an annual run in Thunder Bay, Ontario to continue raising both epilepsy awareness as well as additional funds for Epilepsy Ontario. This run, appropriately named Run for Epilepsy, took place for the first time on Sunday September 19, 2012. The second annual Run for Epilepsy took place on Sunday August 19, 2013 and we were thrilled to have the attendance and support of Robbie Weldon, a Canadian Gold Medalist from the 2010 London Paralympics. The second annual Run for Epilepsy also grew to included a 10k road race. Katie become friends with another person who had Epilepsy, Cody Maunula. They were to run together in the first Run for Epilepsy event. Unfortunately, Cody passed in his sleep from SUDEP(Sudden Unexplained Death in Epilepsy Patients)
This page is dedicated to Cody's memory and all those who live with epilepsy on a daily basis, as well as TO CHALLENGE YOU to run/walk/roll etc to raise epilepsy awareness in your community while at the same time raising funds for epilepsy research, awareness or anything else directly related to epilepsy.

10/20/2021

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08/19/2021

August 19th 2012 Walk/Run for Epilepsy
Team Cody
Lots of memories were made 9 years ago 💜

08/17/2021

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An emotional sight! Loryanne crossing the 100km finish line on Saturday night.

Words can’t really express how proud we are of Loryanne for completing this epic journey, for all her hard work training and fundraising! Our Epilepsy Canada team all got goosebumps virtually watching her cross the finish line.

When Loryanne set out to organize this run, her fundraising goal was $3000. Together with all the runners and fundraisers the 1 in 100 event has raised over $19,000 for research to fund a cure!!!

A HUGE thank you to everyone who donated, spread the word and virtually walked and ran with us this weekend. And a very special shoutout to Team Melissa, Kinsley & Natasha who were our highest fundraisers!!! 💜

If you would like, you can still donate and support Loryanne’s incredible achievement! Please
see the link in bio

08/03/2021

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This is Loryanne Bessette. A 23-year-old student at Queen’s University who was diagnosed with epilepsy when she was 14.

In less than 2 weeks Loryanne will be running an astonishing 100km in 24 hours (that's more than 2 back-to-back marathons people!)

Loryanne is running 100km for the 1 in 100 Canadians living with epilepsy. Her goal is to raise money to help fund research for a cure, and share her story in hope of abolishing the stigma and raising awareness for epilepsy.

She would love your support - to donate: https://www.1in100forepilepsy.com/

07/08/2021

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This is Caleb Wright the 21 year old adventure-junkie from Edmonton, Alberta Canada and the man behind "Caleb For The Cure."

He’s climbed mountains, paddled rivers, explored abandoned mines and buildings. He’s ridden mountain bikes, dirt bikes, motorcycles and quads. And now he’s preparing to row across the ocean to fund research to find a cure for epilepsy!!!

Caleb needs your help to make this adventure happen! He’s currently looking for donors and sponsors. To donate or find out how you can become a sponsor check out the link: https://www.calebforthecure.com/

07/01/2021

05/05/2021

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We are so incredibly proud and excited to announce and welcome Evan, our new Epilepsy Canada Ambassador.

Evan is a Canadian Skeleton Racer working towards going to the 2022 Winter Olympics.

A year and a half ago Evan was diagnosed with left temporal lobe epilepsy from too much brain trauma.

As someone with a visible platform in international sports, Evan is the ideal Ambassador for Epilepsy Canada. He sees the incredible position he is in to raise awareness for epilepsy. “I want to show adults and kids living with epilepsy that they can still live their lives” he says.

We can’t wait to share his Olympic journey and advocacy work with you.

We hope you’ll consider donating to help Evan reach his Olympic dreams and raise money for epilepsy research!

Head over to our website to read more and to donate! Link in bio

03/26/2021

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Purple Day is an international grassroots effort dedicated to increasing awareness about epilepsy worldwide founded by Cassidy Megan. On March 26th, people in countries around the world are invited to wear purple and host events in support of epilepsy awareness.

Canada is the only country in the world who officially recognizes March 26th as Purple Day 💜

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