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We are asking people across Ireland to come together to support an incredible young boy from Donegal, Aaron Langan, who is living with Duchenne Muscular Dystrophy (DMD).
We are asking you to help be a voice for Aaron by sending an email to the Minister for Health.
👉🏻 Letter/Email Link to Minister for Health:
https://adiebrit.github.io/Team-Aaron/
Simply click the link above and enter your name. It will direct you to a pre-written email which can be sent directly to the Minister for Health in just a few moments.
By doing this, we can help ensure the Minister is fully aware of both the urgency of getting this medication approved for Aaron and the overwhelming level of public support behind this campaign.
In addition, please sign the petition below in support of Aaron and other children living with DMD:
👉🏻 Petition:
https://c.org/jc5KHQnBwZ
❗️Please note: You do NOT have to pay to sign the petition — simply press “share” if prompted.
Every email, every signature, and every share helps raise awareness and bring hope to Aaron and his family.
To help raise awareness, Donegal music group Onóir will also host a special concert this Sunday, May 24th at 5pm on The Diamond in Donegal Town.
The concert is in support of Aaron and his family, while also helping to raise awareness of the urgent need for access to life-changing treatment for children living with DMD.
If you can attend, it promises to be a very special evening ❤️
Donegal Association Dublin
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Founded in 1935
An amazing show set in Donegal and a story from the 60’s is on in the Gaiety from 9th to 13th June. A fantastic night out and while it’s getting great traction, people from Donegal will love it even more, as they will recognise all the places etc referenced.
Are Ya Dancin’? - An uplifting yet moving Irish musical play with wonderful live music, plenty of laughs, and a heartfelt story at its core. For individual tickets and more information, visit - https://www.gaietytheatre.ie/events/are-ya-dancin-a-showband-story/
18/05/2026
Aaron Langan, an incredible nine-year-old boy from Laghey, outside Donegal Town, is currently living with Duchenne Muscular Dystrophy and was first diagnosed at 18 months old. While there have been many efforts made over the years to get him the appropriate treatment, Aaron and his family are currently facing a deeply urgent situation, as he now desperately needs access to the drug Givinostat.
While this drug is available in Northern Ireland, it is currently not available in Ireland and Aaron has been unable to access it through cross border and shared island channels to date. At the moment, the HSE are reviewing funding and approval for this medication, but the delays in getting this approval over the line have now become critical for Aaron. Aaron lost his mobility and moved to a wheelchair in March of this year, and every week without access to treatment puts more of his remaining muscle strength at risk. We have been told by his medical team that there is only a very small window left before further decline becomes irreversible.
There has been incredible support for Aaron across Donegal from so many kind people, including Senator Manus Boyle, who has brought this forward in the Seanad, and Aaron’s story was also featured on TG4 last week. The community has really come together behind him, but despite all of these efforts, we are still waiting and desperately hoping for approval of the drug before it is too late.
As a community, we are now doing everything we can to raise awareness and support Aaron in the hope that this treatment can be approved and administered in time, not only for Aaron, but for other children and families living with Duchenne Muscular Dystrophy. Any support that can be offered at this critical time, would be so very much appreciated, and we therefore ask anyone who is in the position to support us, to do so, if they can. Thank you.
'Every day is a race against a clock that shouldn't be ticking so fast'
Read story here: https://www.donegallive.ie/news/local-news/2082731/every-day-is-a-race-against-a-clock-that-shouldn-t-be-ticking-so-fast.html
Donegal Teacher looking for a room to rent on northside of Dublin from start of June.
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