Haus of Van Eps

Grateful for a spring full of storytelling, systems work, and shared learning. 💫

From exhibitions to keynotes to national platforms, I’m excited to keep exploring how perception shapes understanding, access, and belonging.

📍 Current + Upcoming:
🎨 Ball & Chain — Catamount Arts (now-4/5)
🗣️ Through Different Lenses — Rutland County Parent Child Center (3/20)
🔬 The Rare Perceptions Project — Boston Museum of Science (4/18)

Details + RSVP: hausofvaneps.com

Thank you to every partner, collaborator, and community member who makes this work possible. 💛

White House fires entire commission that reviews designs for federal buildings The White House has fired all six members of the U.S. Commission of Fine Arts, the independent federal agency that reviews design plans for monuments, memorials, coins and federal buildings.

https://www.linkedin.com/posts/haus-of-van-eps_when-power-redesigns-the-peoples-house-by-activity-7388583923934715904-km9U?utm_source=share&utm_medium=member_ios&rcm=ACoAABo3aQEBeqMugvDZ7MwODshYqSZPSNswFhU

When Power Redesigns the People’s House by Amanda Van Eps, Haus of Van Eps Architecture is never neutral. It signals who holds power, and who is expected to serve it. The White House was built with… | Haus of Van Eps When Power Redesigns the People’s House by Amanda Van Eps, Haus of Van Eps Architecture is never neutral. It signals who holds power, and who is expected to serve it. The White House was built with intentional symmetry, both in structure and purpose. The East Wing is not decorative overflow. It is...

🌱 Planting Seeds

Today marked the end of Session One for the Arts & Advocacy: Ball & Chain campaign with Disability Rights Vermont and what a day it was! Huge thanks to the Lilac Inn Brandon Vermont for opening their doors to this project. There’s something poetic about creating in a space so full of history, surrounded by gardens that remind you every seed has its season.

While I didn’t take home a Rare Artist Award this year, I’m reminded that recognition isn’t the same as growth. The roots are still spreading, and the first blooms are starting to show.

More to come as this work continues to grow🌿

Check out my piece Ball & Chain, currently a finalist in the Rare Artist Competition! 🏆

👉 You can vote for up to 10 of your favorites.
🗓 Voting closes 9/30/25 at midnight.

https://www.research.net/r/2025RareArtist

Thank you for supporting rare disease advocacy through art 💛

What are you wearing to the resistance?
Shop Now: https://hausofvaneps.myshopify.com/

🖤

Rare Artist will be spotlighting our 2025 Finalists throughout September leading up to Public Voting, September 22–30 at RareArtist.org. Pieces are presented in no particular order.

#10 Meet Amanda Van Eps, diagnosed with Ehlers-Danlos Syndrome and Subependymoma. Amanda's 3D piece, made using gold chains and clay bead, is called "Ball & Chain".

Amanda says, "Our skeleton connects us all, yet rare disease changes how it is carried and perceived. Ball & Chain uses variations of gold chains to drape a skeletal frame, accentuating the spine and ribcage in a way that honors the body while contrasting the instability it can endure. The thick central chain anchors the piece with rigidity, while finer chains drape outward as ribs, shifting with movement. A heavy, hand-crafted clay bead pulls downward, embodying the weight of diagnosis and the way it reshapes daily life.

These materials mirror the contradictions of Ehlers-Danlos syndrome. Muscles ache with unrelenting tension while joints slip silently out of place. These movements are invisible to the human eye, yet this wearable piece renders them visible. As the ribs of chain sway and shift, instability is no longer hidden but felt.

Visibility is often the first barrier in advocacy. Rare disease patients face invisibility twice: first in pursuit of diagnosis, then in the fight for recognition, care, and equity. By reimagining the body as both beautiful and burdened, this piece reconciles resilience and vulnerability.

Art shifts perception. It reveals truths no scan can capture, transforming the unseen into something undeniable and urging dialogue, advocacy, and action."

Stepping into the spotlight: The Brandon Reporter shares our art, our passion, our purpose. Thanks to everyone who supports Haus of Vaneps in raising rare disease awareness through creativity. ⛓️🧡

Brandon artist uses her work to bring awareness to rare diseases - The Brandon Reporter Amanda Van Eps does not seem ill when you meet her.

Opening night was a great success with a nearly sold out crowd! A huge thank you to everyone who attended in support of live theatre!

Three more opportunities to see our production of The Faculty Room at Stone Valley Arts; today at 2pm & 7pm, and tomorrow at 2pm. Tickets are available in advance at www.paramountvt.org/events-calendar/ or cash only at the door!

*This performance is meant for mature audiences.

Finalist energy unlocked. 🔓✨
Haus of Van Eps has officially landed in the 2025 Rare Artist gallery. Visual art meets advocacy, but make it iconic. 🧡

🗓️ Sept 22–30 → Vote for your favorites at RareArtist.org and help bring rare creativity center stage.

📸 Credit: Essoldo Design

One of our creations is about to step into the spotlight. Can’t share the full details just yet, but September is going to be special! 👀⛓️