My Lyme Coach

I’m so grateful to sit down with Bloom Tampa Bay to talk about Lyme Disease Awareness—especially the part no one prepares you for: the first 30 days after diagnosis. That window can feel chaotic and overwhelming, and you deserve a clear plan and real support (not more Google spirals).
Watch the segment here: https://www.wfla.com/bloom-tampa-bay/lyme-disease-awareness-2/
If you’re newly diagnosed—or supporting someone who is—comment PLAN (or message me) and I’ll point you to the best starting place.
Bloom Tampa Bay Global Lyme Alliance ILADS

Lyme Disease Awareness Early diagnosis and treatment are key when it comes to Lyme disease. Founder of My Lyme Coach, Samantha Sloves, talks with Bloom Host, Amber Freeman, about how newly diagnosed patients should navig…

Lyme is Hard. The pain, isolation, crushing fatigue, brain fog, cost of treatment, loss of careers, loss of relationships, and so much more. Lyme non-profits are funding groundbreaking research to help develop more accurate diagnostic tests and effective treatments. Hold on, even if for just one more day, then one more.

You are not alone and there are resources to help.

If you're in crisis or need immediate help, please reach out right now—talking to someone can make a difference. In the United States, call or text 988 for the Su***de & Crisis Lifeline (24/7, free, confidential support via phone, text, or or online chat at 988lifeline.org).

Crisis Text Line (US): Text HOME to 741741 for 24/7 support.
psychiatry.wisc.edu

International Directory: Use findahelpline.com to search verified hotlines in over 130 countries (phone, text, or chat).

You may also find support and guidance at Lyme support groups:
https://projectlyme.org/resource/support-groups/

https://lymewarrior.us/lyme-disease-support-groups

https://www.lymedisease.org/lyme-disease-support-groups/

For financial assistance programs:
https://projectlyme.org/resource/financial-assistance-programs/

https://lymediseasechallenge.org/financial-assistance/

“If you were my daughter, I’d tell you to stop all this nonsense.”

A doctor actually said that to me.

And the worst part? For a second, I believed him.

That’s what gaslighting does — it makes you question your own body, your own pain, your own truth. You start to wonder if maybe you are the problem.

But you’re not.

You’re a person living in a body that’s been through hell — and you deserve to be taken seriously.

I wish people understood how much damage dismissive medicine can do. How a single sentence can unravel months, even years, of progress.

But I also wish they knew this — you can rebuild that trust. You can find doctors who see you, listen to you, and fight alongside you. They exist.

So if you’ve ever walked out of an appointment feeling smaller than when you walked in — I see you.

You’re not dramatic. You’re not crazy. You’re not broken.

You’re just tired of being told you’re fine when you’re not.

And you deserve better.

💚
This is your reminder: your body’s truth is still valid, even when someone else can’t see it. 💚

💚 MYTH: “You should be better by now.”
💚 REALITY: Healing isn’t a straight line — it’s a lifetime of learning your body again.

If you’re tired of proving your illness, this one’s for you.

I lost years to being doubted — told it was stress, anxiety, or “just growing pains.”
The truth? Most of what people think they know about Lyme is totally wrong.
And that misunderstanding costs people their lives, their careers, their relationships.

Healing from something invisible means constantly fighting to be believed.
You learn to smile when you’re breaking.
To say “I’m okay” because it’s easier than explaining the thousand ways you’re not.

But you’re not weak for being tired.
You’re not dramatic for wanting answers.
You’re surviving something brutal — and still trying.

If nobody’s told you lately:
You’re doing better than you think. 💚

The first time I ever saw the GLA Gala, I was 14 years old. I watched through my screen from home, sick, wondering if I’d ever get better. If I’d ever walk again. If I’d ever get to be in that room.

Last night, I was there. In heels. With my boyfriend. Surrounded by people who understand what this community means.

It might not sound like a big deal, but when you’ve had everything taken from you, things like walking in heels or dancing or just being there feel like miracles.

I’m so grateful for every person I met, old friends I got to hug again, and the new ones who make this community what it is.

GLA, thank you for what you do and for reminding me that my pain had purpose. I’m proud to represent this community and to turn what once broke me into something that gives others hope. 💚

Brain fog isn’t quirky or “cute.” It’s brutal.
It’s being mid-sentence and your thought just… disappears.
It’s trying to follow a conversation but your brain feels like static.
It’s not forgetfulness. It’s a fight.

💚 If you’ve lived it, you know how frustrating it is. You’re not lazy. You’re not broken. And you’re definitely not alone.

👉 Save this for the days brain fog steals your words.

No one tells you how heavy even the smallest things can feel when you’re sick.
And yet, those “small” things — breathing, resting, listening to your body — matter MORE than anyone on the outside could ever understand. They’re not “nothing.” They’re survival. 💚

Accepting where you are in your healing journey is one of the hardest parts.
Because no one tells you the truth:
Healing isn’t a ladder. It’s a slinky. Up, down, forward, back. Never a straight shot.

It can feel like you’re circling the same ground…
But if you look closer, you’re still moving.

💚 Your pace is valid.
💚 Your timeline doesn’t have to match anyone else’s.
💚 You’re doing better than you think.

✨ If you’re ready for support that actually meets you where you are → Reset Sessions are open
https://www.mylymecoach.org/booking-calendar/_select-date-time?timezone=America%2FNew_York&referral=service_details_widget