Porphyria Care

We find more and more Porphyria studies these days. Have you ever been in a study for Porphyria?

Clinical Diagnosis of Acute Porphyria - The Porphyrias Consortium The porphyrias are a group of genetic diseases caused by disturbances in the formation of heme, an essential component of hemoglobin and other proteins, leading to either acute (neurologic) and/or chronic (cutaneous) symptoms. Acute porphyria is often difficult to diagnose because symptoms may be no...

Happy Thanksgiving Everyone!

What surprised you about Porphyria?

4 Things You May Not Know About Porphyria - Health - Wellness Porphyria has been linked to vampirism and to some extent to the legend of werewolf in pop culture. There have been notable cases in the past which gave birth to the notion of existence of ...

One of the best AIP websites. The website has resources for those with AIP and resources for doctors. What other websites have you found helpful?

Acute Intermittent Porphyria | Information for Patients and Physicians Diagnosing Acute Intermittent Porphyria (AIP) may be challenging. Here is AIP information for physicians and patients.

What do you want to know about Porphyria?

We love to post blogs related to Porphyria. This allows us all to learn from each other. If you write a blog about Porphyria, please share the link in the comments below.

Our Porphyria Blog This medical disclaimer is based on a Contractology medical disclaimer document available from www.freenetlaw.com. Contractology supply a range of commercial contracts and other legal documents, such as privacy statement forms.

Sometimes hope is just being believed - Acute Intermittent Porphyria http://ow.ly/5mGba

Sometimes Hope Is Just Being Believed – Acute Intermittent Porphyria.

Happy Fathers Day to all the wonderful Dads!

We all know to stay away from Alcohol. But did you know it exacerbates Porphyria Cutanea Tarda?

Alcohol Exacerbates Skin Diseases and Psoriasis Alcohol can damage skin causing rosacea, porphyria cutanea tarda, post-adolescent acne, discoid eczema and psoriasis.

The blog "Porphyria: A Royal Pain" is the story of Jan in her own words as she searches for medical answers to Porphyria. Do you have a blog about Porphyria?

Porphyria: A Royal Pain

A story about Porphyria, and you can tell your story too. Have you ever told your story to anyone outside your family?

My Daughter | I Have Acute Intermittent Porphyria I don't have this disease, as far as I know anyway. My daughter, who is 16, does however. She was just diagnosed on Friday, March 11th but h...