09/08/2026
๐ COME SKATE WITH JACK!
๐
Thursday, September 10
โฐ 3:15 PM
๐ Mattamy Rink โ Bell Sensplex
โธ๏ธ Everyone is welcome to skate!
๐ Free family pizza party afterward at Centre Ice Restaurant
This afternoon is about having some fun, bringing our hockey community together, and supporting one of our own โ a 9 year old hockey player from Ottawa, Jack.
For anyone who doesnโt know Jackโs story, Jack was diagnosed with a rare, progressive genetic disease called Hereditary Spastic Paraplegia Type 4 (SPG4). SPG4 causes progressive loss of mobility, and currently there is no cure or treatment that can stop its progression.
But there is also a tremendous amount of hope.
Research toward a potential cure is underway, but rare-disease research requires significant funding to move toward human clinical trials. Our family has been fundraising to help push that research forward and give Jack โ and everyone affected by SPG4 โ the best possible chance at a cure.
Weโre not asking everyone who comes to donate. We would simply love to see the rink packed with families supporting Jack, learning a little more about SPG4, and helping us spread the word.
If youโd like to help, one of the biggest things you can do is share Jackโs story, our fundraiser, and our social media pages with your family, friends and community. Every share helps us reach people we never could on our own.
๐ DONATE OR SHARE
๐จ๐ฆ Canadian Charity โ BluGenes SPG4 Cure
http://blugenes.org/spg4-cure
๐ GoFundMe
http://gofund.me/f7f8f8f8
๐ฑ FOLLOW & SHARE JACKโS STORY
Facebook: SPG4 Cure Fundraiser
Instagram:
Email: mailto:[email protected]
A huge thank you to Marc & Chelsea for organizing the skate and to DTS for generously sponsoring the event.
The hockey community has already shown our family an incredible amount of support, and weโd love to have as many hockey players, siblings, parents, coaches and friends as possible join us.
Come skate, have some pizza, learn a little about SPG4, and help us get one step closer to a cure.
We canโt wait to see everyone there! ๐๐
Richard & Anna Laidlaw
Jackโs Parents
SPG4 Cure Fundraiser