04/30/2026
🐻 BTPB26 is coming… are you registered yet?
Join us on June 13, 2026 at Lawson Creek Park in New Bern, NC for the Bear Town Paddle Battles—supporting families affected by Huntington’s disease.
Spots are filling up, so don’t wait!
👉 Register now: https://paddleguru.com/races/BearTownPaddleBattles2026
Tag your paddle crew, share this post, and let’s make this the biggest one yet.
04/30/2026
Sign up today — The Bear Town Paddle Battles are back! 🛶
📅 Saturday, June 13, 2026
📍 Beautiful New Bern, NC
Whether you're a paddle sport enthusiast or a seasoned racer, this is your chance to race, have fun, and support a meaningful cause. 💙Every registration includes a shirt!
👉 Register now: https://www.hdreach.org/community/paddle-battle.html
04/10/2026
Reaching out to those in the New Bern area. We are still in need of sponsors for the 2026 Bear Town Paddle Battles. If you or someone you know may be interested, please send an email to [email protected] or DM us. Visit our website at https://paddleguru.com/races/BearTownPaddleBattles2026 to learn more.
11/14/2025
The Time is NOW! Join the Fight to Bring Hope to HD Families: Urge the FDA to Uphold Accelerated Approval!
Huntington's Disease Society of America, Help 4 HD International, HD Reach, Huntington's Disease Foundation and HDYO have joined forces on a petition directly to the FDA.
Key Asks of the FDA:
Honor Your Previous Guidance: Fully uphold the previously agreed-upon accelerated approval pathway for AMT-130, including the use of external control data from natural history studies.
Recognize the Urgency: Acknowledge the dire, unmet medical need in the HD community and act with the expediency that Breakthrough Therapy and RMAT designations demand.
Expedite Review: Make the review and approval of AMT-130, and any other future HD therapies, a top priority to get this potentially life-altering therapy to patients without further delay.
Sign the Petition Today! Don’t forget to confirm your email to make it count.
https://www.change.org/p/bring-hope-to-huntington-s-disease-families-urge-the-fda-to-uphold-accelerated-approval?source_location=search
09/24/2025
Finally. Hope.
Huntington's disease successfully treated for first time
One of the most devastating diseases finally has a treatment that can slow its progression and transform lives, tearful doctors tell BBC.
07/27/2025
Annual bear town paddle battles make waves to support Huntington's disease families
The bear town paddle battles are back, paddle vessels of all kinds hit the water on Saturday to help families with Huntington’s disease.All event proceeds go to